The Florida Cleft and Craniofacial Network, or FCCN, is a leading cooperative group composed of members from the University of Florida, Children’s Medical Services(CMS) of the Florida Department of Health, regional and local family networks, and Florida healthcare providers. Its mission is to assist professionals and families who care for children with craniofacial differences, and to educate and empower them with knowledge and understanding of the needs of children with cleft lip, cleft palate, and other craniofacial conditions.
With the financial help of the Florida legislature, FCCN:
- Works cooperatively with professionals and community leaders throughout the state to provide coordinated, family-centered care.
- Works with CMS area offices in each region regarding assistance to parents of newborns with craniofacial differences.
- Assists in developing effective feeding strategies and obtaining early counseling and specialized feeding supplies (e.g. as bottles and nipples).
- Improves communication with parents of newborn infants with hospitals, physicians, nurses, and other professionals.
- Arranges for training sessions for professionals and parents.
- Develops a registry of individuals and agencies served through the network.
- Supports family weekend camps in two regions of Florida:
- UF Craniofacial Camp close to Gainesville, Camp Boggy Creek in central Florida, and a camp in southern Florida.
If you would like more information about the activities of FCCN, or would like to contact the coordinator in your region, please contact Holly Shenk at (352) 627-9326, or toll-free at (800) 726-2029. You can also email her at UF Craniofacial Center. She can also help with getting educational materials and feeding supplies.
University of Florida Craniofacial Camp
Every summer the Craniofacial Center holds a four-day camp for children with craniofacial differences and their families who are followed in local clinics. Spots fill up quickly, and this year is no exception, as all the spaces have been filled. The camp is designed to help children develop coping skills and improve self-esteem and self-confidence. The camp, which is staffed by our team members and UF graduate students, provides an opportunity for 15-25 families to spend time with specialists and other families with similar problems in an informal setting where they can ask questions, express concerns, and develop friendships. Camp Montgomery, the site of the annual camp, is located on beautiful Lake Crystal, about 40 miles east of Gainesville and the UF campus. This camp features individual cabins for families and staff, a large dining/conference hall, a covered basketball court, and extensive lake frontage for boating, fishing, and swimming.
For more information on future camping opportunities contact UF Craniofacial Center.