Florida Cleft and Craniofacial Network

Group photo of campers

The Florida Cleft and Craniofacial Network (FCCN)

The Florida Cleft and Craniofacial Network, or FCCN, is a leading cooperative group composed of members from the University of Florida, Children’s Medical Services(CMS) of the Florida Department of Health, regional and local family networks, and Florida healthcare providers. Its mission is to assist professionals and families who care for children with craniofacial differences and to educate and empower them with knowledge and understanding of the needs of children with cleft lip, cleft palate, and other craniofacial conditions.

With the financial help of the Florida legislature, FCCN:

  • Works cooperatively with professionals and community leaders throughout the state to provide coordinated, family-centered care.
  • Works with CMS area offices in each region regarding assistance to parents of newborns with craniofacial differences.
  • Assists in developing effective feeding strategies and obtaining early counseling and specialized feeding supplies (e.g. as bottles and nipples).
  • Improves communication with parents of newborn infants with hospitals, physicians, nurses, and other professionals.
  • Arranges for training sessions for professionals and parents.
  • Develops a registry of individuals and agencies served through the network.
  • Supports family weekend camps in two regions of Florida:
    • UF Craniofacial Camp close to Gainesville, Camp Boggy Creek in central Florida, and a camp in southern Florida.

If you would like more information about the activities of FCCN, or would like to contact the coordinator in your region, please contact Holly Shenk. She can also help with getting educational materials and feeding supplies.

Holly Shenk
(352) 627-9326
Toll-free (800) 726-2029
shenkh@ufl.edu