Resources

At the UF Craniofacial Center, we believe in educating and empowering parents to make the best decisions for their children. Whether you need information on feeding your baby or you’re looking for general assistance with parenting, our team is here to help with books, websites, support groups, and community connections chosen with your needs in mind.

Educational Videos

• Craniofacial Clinical Presentation
• Craniofacial Timeline & FAQ
• Introduction to Craniofacial Care
• Oral Surgery Treatment & Guidance
• CPE Orthodontic Treatment
• CPE Psychological Evaluation
• Speech Therapy and Your Craniofacial Team

Books for Kids

We have compiled a list of different books for kids that explore hospital visits, bullying, and much more!

• Blue Cheese Breath and Stinky Feet: How to deal with bullies
• Bullies are a Pain in the Brain
• Curious George Goes to the Hospital
• Franklin Goes to the Hospital
• The Story of Lippy the Lion
• When Molly was in the Hospital
• Whoever You Are
• Wonder
• Making Faces: Logan’s Cleft Lip and Palate Story. By Logan & Sonja Bristow (Pulsus Group Inc., 2007)

Organizations

A strong, healthy network of resources is vital to ensuring your children have everything they need to grow strong and healthy. The UF Craniofacial Center works with a number of organizations in meeting all of your child’s health care needs.

Online Resources

• American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)
• WIDE SMILES – Cleft Lip and Palate Resource
• UFHealth
• The Florida Cleft Palate-Craniofacial Association (FCPA)
• Florida Center for Plastic Surgery & Aesthetics
• Enfamil™
• Camp Boggy Creek
• Florida Cleft Palate Craniofacial Association (FCPA)
• Deliver the Dream
• Children’s Medical Services – Special Services for Children with Special Needs

Development

We believe that understanding your child’s development is key to keeping him or her on track for educational and future success. Our team of specialists offers wrap-around care, designed with the family in mind. Feel free to ask about these and additional resources at your child’s next appointment.

Education

Some children with cleft lip/palate and other craniofacial malformations may also have learning disabilities and various educational challenges. Early diagnosis and intervention are important, as well as being knowledgeable about your child’s educational rights.

Public law 94-142, a federal law, states that every child has the right to a free, appropriate, public education. For some children, this may involve the use of an Individualized Education Plan, or IEP, in which you, your child, your child’s teachers, school administrators, health care providers, and others may participate in creating. Your UF Craniofacial Center team is here to help with questions you may have about educational choices and intervention opportunities for your child.

Educational Links

• Florida’s Early Steps System
• Florida Diagnostic & Learning Resources System
• Florida Department of Education
• Alachua County Public Schools
• Multidisciplinary Diagnostic and Training Program

Financial Assistance

Caring for your family’s needs can be quite a challenge. Every parent knows the value of a good network when it comes to providing a healthy, nurturing environment for their children. The UF Craniofacial Center is here to help with links to insurance information and co-pay assistance.